Community
Advocacy
Research &

Education

The first recipient of our HD-CARE Champion, Griselda Barbosa, ended her fight with cancer last night, February 11, 2017.

Read more...

HD-CARE 2nd Annual Symposium

March 25, 2017, 8:30 am - 2:00 pm
UC Irvine Sue & Bill Gross Stem Cell Research Center  


Keynote Speaker: Dr. Ann Smith, Clinical Director, Ionis Pharmaceuticals
Registration is free but you must register

Please contact: Karen Thorburn at Kthorburn49@yahoo.com

MESSAGE FROM THE PRESIDENT:


Happy New Year!  We thank everyone who made 2016 such a successful year for our HD community, and welcome new volunteers to join our UCI support organization! 2017 is going to be another busy year for HD-CARE...Read More

The Bioinformatics Team routinely masters concepts, methods and systems that have arduously steep learning curves. To the HD-CARE Board, their work ethic has brought to mind the incredibly difficult ascent of Mt. Everest. Conquering the world’s highest peak is not an easy adventure, and neither is understanding biological data in search of answers for the cause of Huntington’s disease, and the pathway to conquering it.  Hence the name of the award, the HD-CARE Everest Award.

Congratulations, Dr. Malcolm Casale, Ryan Lim, Andrea Reyes-Ortiz, Dr. Terri Thompson, and Dr. Jenny Wu on being the first recipients of The Everest Award!  HD-CARE and the HD community is grateful for your commitment in search of answers to end Huntington’s disease. 

HD-CARE Board of Directors & the HD Community.


Click here for pictures of the event

A Year in Review:


​On March 26, the FDA published “The Voice of the Patient” (FDA’s) based on responses from over 200 HD patient advocates who attended the Patient-Focused Drug Development Initiative.  Board member Daniel Medina and I attended that meeting in Washington D.C.  This was a historical moment for HD families...Read More 

Griselda Barbosa awarded the first HD-CARE Champion Award

HD-CARE Everest Award

Thank you to our sponsors:

"Potential therapeutic targets for Huntington's disease" 

"A contributor to this study is HD-CARE Scientific Advisory Board Member, Dr. Joan Steffan. The study showed that phosphorylating a specific spot of the protein called S421 protected a mouse model of Huntington's from developing symptoms of Huntington's disease".  

Read more here...

On July 14, 2016, The HD-CARE Board of Directors honored the UCI Thompson Lab Bioinformatics Team: Dr. Malcolm Casale, Ryan Lim, Andrea Reyes-Ortiz, Dr. Terri Thompson, and Dr. Jenny Wu at the University Club, UC Irvine.

Through their work, the team has inspired us with the hope of making this the last generation of Huntington’s disease.  The virtuosity of the team’s work inspired HD-CARE to create the first Everest Award.

HD-CARE NEWS

LEARN About HD ENROLL In Enroll-HD STORIES Of HD

HD-CARE NEWS

make a donation