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HD Stories

Shana
Shana Martin is a world champion lumberjack athlete, fitness competitor, model, personal trainer, business owner and “at risk” for Huntington’s Disease. Her mother succumbed to HD in 2013 and Shana advocates for HD education. With no current treatment or cure, Shana decided not to test at this time and is relentless in living her life to the fullest. 


michael

​A happy, generous and enterprising entrepreneur, Michael aspired to become a chef and open his own restaurant. He also desired to raise a big family but, at age 26, he was diagnosed with Huntington’s Disease and ruthlessly robbed of his dreams.  Always the optimist, Michael remains an advocate for HD research.


Margie
Margie was once a talented, vibrant young woman with a background in acting and modeling until seized by Huntington’s Disease.  HD took its physical toll on Margie, but it never shook her faith. She fought the good fight, she finished the race, and she kept the faith for a cure in time for her two children who are now “at risk” for inheriting the fatal gene.


Marie
Marie presented warning signs at an early age and was diagnosed with Huntington’s Disease at age 18.  She did not let the effects of HD stop her from embracing life and even attending college.  She was a sweet and gentle spirit and friends nicknamed her ‘Snow White. Marie was an ambassador for HD awareness until she succumbed to the disease at age 32.

ANN
“Let’s not take life for granted,” is Ann Tillery’s personal motto. After a 20 year struggle, Ann recently lost her beautiful, fun-loving mother to Huntington’s Disease. Her sister, as well as her uncle, are currently battling HD. Ann volunteers extensively within the HD community and hopes to see the disease eradicated in her lifetime.


Chris
Chris lost his mother to Huntington’s Disease and he now lives “at risk” for inheriting HD. He hopes for a treatment or cure so his children will live in an HD free world. 

Scott

At the age of 35, Scott Bradley tested positive for Huntington’s Disease. Soon after, Scott’s four year old son, Matthew, began showing symptoms and was diagnosed with Juvenile HD.  When he was six years old Matthew lost his brave battle with HD.  Scott’s symptoms have progressed but he remains optimistic and continues to share his story to raise HD awareness.

Stephany
When she was only ten years old, Stephany lost her beloved father to Huntington’s Disease. Her family and memories of her dad inspire Stephany to appreciate each day and pursue her goals and dreams.  While Stephany is candid about her “at risk” status, at the present time she has elected to postpone testing for the HD gene. 


janet
Janet inherited the Huntington’s Disease gene from her late father.  She was diagnosed with HD at age 61 and although Janet is fully HD symptomatic, she firmly believes she will be the first person cured of HD in Orange County, California.  Janet’s two adult children and seven grandchildren are all “at risk” of inheriting HD.